In my previous role in child rights advocacy I read a national review which found that there was inconsistent access to palliative care services for children and their families. On a population level this is not a 'common' health need, but it is one of those areas of health and wellbeing where the impact of the situation means that it is a priority.
So I was pleased to see this month that the editors and editorial board of the journal Archives of Pediatric and Adolescent Medicine have decided to have a rolling theme issue on palliative care, dying and bereavement. Dr Rivara says:
Our intent is to bring these issues to the forefront of pediatrics and adolescent medicine, just as they are in the minds of those children and families who are confronted with such loss. We hope the attention of the Archives will advance science and provide help to physicians dealing with these issues on behalf of their patients and families.
On a global scale of course there are many many more children who die needlessly. Their need is not for palliative care. But for the basics of clean water, food, or protection from preventable communicable disease. And for far too many the prerequisites of the basics - life free from conflict, war and environmental degradation. Despite recent improvements, over 26,000 children aged under five still die every day. I cannot rejoice that the annual toll has 'fallen' to 9.7 million.Yet these are not mutually exclusive issues that we face. Our children have the right to be fully considered as nations make decisions about their health expenditure. AND our children have the right to be fully considered as all nations make decisions about expenditure. On weapons. Or water.
4 comments:
I wish you well as you consider palliative care - I like the imagery of it being a form of midwifery, but because there is such fear around death, it is probably a more costly area to be involved in.
Obviously, that is all the more reason for good people such as yourself to consider it !
Thanks Barb. It will be a big move for me. I am drawn to the holistic philosophy and to the true multi-disciplinary team approach. Deciding next week.
Living with a son whose major heart condition forces us to live in the light of his and our frailty and need I am so pleased that folk like you take time to consider this important. Every blessing as you find your way forward.
Thanks Sally. I have got the job in palliative care and start on Thursday. I'll be working in the day hospital, in a community where a high proportion of the population have English as a second language. Quite a career change and a challenge. One I am looking forward to!
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